Shown in a controlled trial for the benefit named on the cardGuideline recommended with limited trial evidenceUnproven not tested well enough to know; this is not the same as shown not to workAvoid
Each card says what the benefit is. A trial showing better quality of life is not the same kind of evidence as one showing longer survival.
My day
The things you chose below. Ticks clear each morning. Saved only in this browser.
For each topic, choose what is closest to how things are today. The planner turns that into things to raise with your care team. The lines are our own way of sorting topics for discussion, not a clinical staging system, and they do not replace an assessment.
Mark a step “not for me” if it is already arranged, does not apply, or is not something you want. You decide what matters.
This page is general information drawn from published clinical guidelines. It is not medical advice and it does not know your situation. ALS differs a great deal from person to person: you may never meet some of these stages, and they can come in a different order. Take anything you want to act on to your ALS clinic or care team first.